I realize it is almost 9pm on day 3 of my 31 day challenge..technically it still counts! We were in Dallas today for Parker's NACD eval. There and back in a day, WHEW!
Oral motor...CRITICAL! And don't let them tell you it isn't necessary until they "talk." We had several Drs (even the specialist at the local DS clinic tell us 2 years was early enough). We started at 4months and it ranks close to the top of "do this right away ". My Dr. didn't think it was necessary, but wrote the RX because he knew I wasn't going to back down. Find someone that will honor your request for the RX. Talk to them about the research and tell them politely you appreciate they don't think it is necessary, but you want the RX order written. People often ask, "what can you do with a baby?" But, there truly are things that are of benefit and sooner rather than later. We started with a series of about 5 exercises in the mouth and cheeks and have continued to add things over the months. Palatel stretches are important, you've heard the comment that kids with DS have high palates. Guess what they really don't and if you start soon enough you can help stretch and mold the area. We did lip rounding and stretching as well as bite and roll tubes as Parker got older. Oral motor helps prevent tongue protrusion and we learned how to prompt Parker's tongue back in proper resting place if he wanted to push it out. Contrary to what most think, you should not push it back in! That builds the muscle and can worsen the issue! We do oral motor at home at every diaper change and feeding. Parker never minded the stretches and always complied easily. We keep a box of gloves handy and use them when we stretch his mouth. I will admit it got interesting when he got more than one tooth, but we still get them done! Oral motor is different than speech therapy although some ST's do have the training.
Climbing is a new favorite activity..here is Parker tonight climbing couch and yesterday on the dog gate...SIGH! :)
"For I know the plans I have for you," declares the LORD, "plans to prosper you and not to harm you, plans to give you hope and a future.Jeremiah 29:11 Our unexpected journey with Down syndrome, babies with heart conditions, T21, and AVSD.
Lara, 40 year old wife to Michael (married 17 years, best years of my life)! Mom to 4 wonderful kids! Taylor, 11, Mallory, 8, Madeline, 6, and Parker born 5/23/09. We found out after delivery Parker has Down syndrome and a complete AVSD. He was scheduled to have open heart surgery at 4-6months, but God intervened! His surgery was postponed until July 2010 and God healed his VSD hole in the process. So, on July 20, 2010, Parker had open heart surgery to repair his transitional AV canal defect. He was in ICU for less than 24hours and home in 72 hours. We never looked back! I own an Executive Search Firm focused on Accounting/Financial placement (used to work in Big 4). Actively involved in my kids activites and school; all are competitive swimmers and son Taylor plays tournament baseball. Girls do tumbling as well. Avid runner and boot camp fanatic. Used to be a competitive figure skater growing up. LOVE to shop, ebay/etsy crazed, addicted to Starbucks non-fat lattes, a child of the KING, thankful that we are saved by faith and grace!