When we first learned of Parker's dx we did what most folks would do...we searched the internet...most of which leads to the depressing, outdated info, BUT we found some fantatic sites that I HIGHLY recommend to new parents. You'll be surprised, they aren't the National Down Syndrome Center or the local DS Chapter. Some of I have linked to in previous posts, but here is the "short list"
www.einstein-syndrome.com
Miriam has a fantastic letter here that I send everyone I meet to now..I wish I had someone give this to me when Parker was initially diagnosed..her top 15 things a new parent should know is terrific!
http://einstein-syndrome.com/2009/04/11/top-15-things-a-new-parent-should-know/
http://www.bcdsc.org/
http://sites.google.com/site/superdownsyndrome/
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