Tuesday, November 24, 2009

Tooth Fairy!

and no I dont mean Parker! Mallory FINALLY lost her first tooth at almost 8 years old(she will be 8in Feb)! All of our kids are late getting teeth(don't get them until one year) and Taylor we thought was late losing at 6.5 years. She has been waiting since K to loose teeth and holds the honor of being the only 2nd grader who hasn't lost any teeth...no more! She can return to school and put her name on the "lost tooth" chart. It is the little things...makes me a bit misty-eyed..my girl is growing up and all too soon she will be going shopping with friends..and taking about boys..wait, she already does that?!

Monday, November 23, 2009

6 months old!

“Enter his gates with thanksgiving and his courts with praise; give thanks to him and praise his name. For the LORD is good and his love endures forever; his faithfulness continues through all generations.”- Psalm 100:4-5

Happy 6 months my precious Parker! Mom, Dad, Taylor, Mallory and Madeline couldn't be more in love with you! You have grown so fast and that "baby" stage is already ending :( You surprised me last night on tummy time and inched and grabbed a block! I have "proof" LOL! Right place at right time w/camera which NEVER happens! Looking forward to our first Thanksgiving, we have lots to be thankful for!
Blessings to all!

Saturday, November 21, 2009

Trust and Obey..

Mallory learned an old hymn this week at school and I have found myself singing it all week..

"Trust and Obey

because there is no better way

to be happy in Jesus

than to Trust and Obey"

Simple words, but great reminder! Parker had a terrific visit to the Cardio Dr Friday. He "passed " all his tests with flying colors..BP excellent! pulse/ox 97%!color, beautiful!weight gain strong (14lbs 4ozs ,naked so no cheating), and his xray looked great. Heart not swollen nor signs of pulmonary distress (leakage from heart). She showed me the areas on the xray where we can see some slight leakage, but it is minimal. Heart size is normal too. Amazingly she said we might even wait until he is 2 years(WHAT?) rather than next summer although if he has any more leakage showing we may proceed next summer. We could even wait longer, but as she said we want to have surgery before Parker would develop a "fear" of the surgery. Before age 2 they may have stranger anxiety, but they don't know what is happening. I asked 1million questions again about "why" change of plans, why wait, etc...and she patiently answered them. Parker is very "fortunate" in that his AV canal defect in the VSD has a very small hole. The VSD component is what dictates the timing of surgery since it can cause pulmonary damage from the leakage of blood to the lungs. Kids with this defect don't usually have small holes, they are usually quite large which is why they are 4-6m when they have surgery. I asked again if this could "fix" itself, but was again reminded that his anatomy only has one mitral valve and it needs two. I feel at peace although there is a part of me that wishes it was behind me. Funny to sound "jealous" if that is the right word? of my friends who are already through the surgery! I love you girls so much please don't take that the wrong way :) I want to be on the other side, but also know we want the best outcome, so...we will "trust and obey!" She remarked at how strong he is and how strong his tone is. Parker is bearing weight very well on his legs and trying to sit independently. I like when the Dr comments that way! She was amazed really, she said "just like a typical baby!" She said we are blessed and she is correct!! So, we don't see her again until end of March and know more about surgery then. I left with her commenting that this summer is probably better and I am sure we would feel better with it behind us too, but we wait on God's timing. We go next week for another Synagis shot, then to Parker's 6mo well baby w/Pedi the following week. Parker is 50% on the Ds growth chart in weight and height. Nice place to be I think! I hadn't seen that chart in awhile and it was interesting to see. She also said that his weight gain may start to slow so not to panic, he probably won't gain as quickly as he gets older since he is almost 6months. A relief since I always panic if he isn't hungry one day :)
Looking forward to a week off with the kids and Thanksgiving with family. Not looking forward to grocery shopping, but maybe midnight is the time to go?
Count your blessings one by one!
PS. check out his hair!! Love the shirt with "bad hair day" :)

Thursday, November 19, 2009

Thoughtful Thursday

first and foremost, the news is excellent for Baby Leila! She had a successful surgery and is recovering so well! As her Mom wrote, the news is all good! Continue to pray for her protection from illness and a quick recovery so her family can be home for the holiday.

Yesterday Parker and I visited The Rise School and had a wonderful visit. What we saw was very encouraging and the "unknown" of what the future holds didn't seem nearly the mountain my mind has created. I left feeling confident and not anxious about his future and know that I am coming to a turning point (or so I believe) with his diagnosis. He continues to do the things "typical" kids do and my heart bursts with pride with each smile, laugh, coo, and new skill(see pic for his best raspberry sound). I don't know what the future holds, but I don't know what it holds for any of us, so I choose to live in the moment and the gift of each day and be thankful!

We have a visit with the cardiologist tomorrow so I will post a medical update then.

Be thankful! Blessings to all!


2 Corinthians 4:15All this is for your benefit, so that the grace that is reaching more and more people may cause thanksgiving to overflow to the glory of God.

Tuesday, November 17, 2009

Prayers for Leila

Today is November 17th, the original date we were given for Parker's surgery before we were rescheduled for Oct 21st, then we were postponed! BUT, today, a precious little girl named Leila is having surgery with Dr. Fraser and I am asking for prayers for her family. I am amazed that God introduced me to this family and am honored that we can learn from her journey. God continues to amaze me with how he has orchestrated all of this long before Parker was born! So today please pray for strength for the family, wisdom for the surgeon and medical staff, protection from any illness, no unexpected issues, and a quick recovery that includes being home for Thanksgiving.

Anticipating God's best!

Monday, November 9, 2009


"Give your entire attention to what God is doing right now, and don't get worked up about what may or may not happen tomorrow. God will help you deal with whatever hard things come up when the time comes" (Matthew 6:34 MSG).

A fitting scripture for what I have been feeling lately. I love the translation from the Message. We spent the weekend at a swim meet and a baseball tournament for Taylor and I found myself thinking about Parker missing these moments in life. I am not surprised that these are the verses he gave to me. I am thankful that Parker continues to thrive, he doesn't need medication and know we are truly blessed! Today's devotion arrived with another reminder...thank you Lord for always meeting my needs! Parker's new favorite toy is his Nuk brush and here he is with big brothers winnings! Wonder if the Nuk brush could make my other three brush their teeth more often?

"May you always be joyful in your union with the Lord. I say it again: rejoice!" (Philippians 4:4 TEV).

Thank God in all things--Whenever you pray, you should always pray with thanksgiving. The healthiest human emotion is not love but gratitude. It actually increases your immunities. It makes you more resistant to stress and less susceptible to illness. People who are grateful are happy. But people who are ungrateful are miserable because nothing makes them happy. They're never satisfied. It's never good enough. So if you cultivate the attitude of gratitude, of being thankful in everything, it reduces stress in your life.Think about the right things--If you want to reduce the level of stress in your life, you must change the way you think because the way you think determines how you feel. And the way you feel determines how you act, which is why the Bible teaches that, if you want to change your life, you need to change what you’re thinking about.This involves a deliberate conscious choice where you change the channels. You choose to think about the right things. Because the root cause of stress is the way we choose to think, we need to focus on the positive and on God's word.What is the result of not worrying, praying about everything, giving thanks, and focusing on the right things? Paul tells us the result is, "you will experience God's peace which is far more wonderful than the human mind can understand. His peace will keep your thoughts and your heart quiet and at rest as you trust in Christ Jesus."

Tuesday, November 3, 2009

Do you wonder when?

Lately I've been feeling these moments of fear/sadness about "when" the delays begin. I guess because Parker is no longer a "baby" at 5 months I've been "looking" for those signs of delay if that makes sense. Maybe it is a false sense of hope that Parker won't have any delays, maybe it is a hope that the test is wrong and this is all a bad dream. I remember my pediatrician saying at 6months you may begin to notice the delays, so as we approach that timeline the anxiety is creeping in. I've been thinking back to when the other kids were young trying desperately to remember when they sat up, stood up, walked,etc.. Some milestones I remember without fail. Taylor and Mallory walking on Mothers Day (Taylor at 11months and Mallory at 15 months). Never once did it worry me that they were "behind" their peers (or ahead for that matter). I hate that Parker has to endure "exercises" and "playtime" with purpose. He doesn't know any better, but I feel guilty if we don't exercise, stimulate, or stretch his mouth daily enough times. I wonder if his entire life will be spent around therapy of some kind? I hate that Satan robs me of the joy of just loving my son for the moment. I was looking back at my photos to see if I could remember when Madeline sat alone for the first time and found a picture. 7 months. "Good, I thought, 2more months, Parker will surely be able to sit by then." We have been working on standing, bearing weight on his legs which he tolerates well at this point, I wonder will he pull up at 10-12months? Will I always compare him to my other kids or will I one day accept him for his timeline for achievements?
What struck me was the resemblance between Parker and Madeline. I saw this early on when Parker was born, but these pictures show how much they do look alike. Someone told me that Parker has 1/3 of me, 1/3 of his Dad, and 1/3 of the "extra" which makes him more like us than the Ds. These pictures prove it! Madeline is so proud to say, "Parker looks like me Mom." I wonder when she gets older will she feel bad about saying that?
I know that God is still working on the "what for?" in me. As I always pray with the kids, "his mercy is new everyday and his grace is sufficient." Lord give me the peace that passes all understanding and the ability to trust you in all things.
"Do not throw away your confidence; it will be richly rewarded" Hebrews 10:35

Monday, November 2, 2009

Parker's First Halloween

today is "wordless wednesday" on Monday :)

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Our Family Memories

Our Newest Arrival!

First Smile

Found my hands!

New Big Sister


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