This weekend was our annual Memorial Day Madness tournament (and a swim meet). 4 days in 100+ degree weather, YIKES! And summer isn't even here yet! A bonus picture of Mallory from the Taylor Swift concert too...
We heard back from the Dr. and after extensive research and discussion with our surgeon the recommendation is to go forward with open heart surgery on July 20th. The bottom line ..the issues are more related to the ASD than they are to the common valve. Rhythm and lung issues can become rate-limiting factors for his lifespan if we leave even a very minor degree of dilation of his right heart (specifically related to the ASD). Since it needs to be fixed, there's no point in waiting until he's older. It's much easier on him now in terms of apprehension, fear and recovery. Mike and I are at peace with the decision, so we will proceed and know God has a perfect plan. Please don’t misunderstand that we aren’t afraid (we are), but there is comfort in having a definitive decision if that makes sense. Time to close this chapter of our life.
We will talk to the kids when things quiet down, so please remember they don’t know. We love seeing all of you at church, school, baseball, swimming and everywhere and know that you all care and love us very much and want to know more, but please temper that with the fact that our kids aren’t aware at this point.
At this point we know July 19th we go to TCH for a morning full of tests, then go home to sleep (yeah!) and arrive at 6am for surgery. Hospital stay is approximately 7 days. ICU 2-3 days. Now, to keep Parker healthy becomes out top priority. We know Dr. Fraser is militant about his patient’s health and will not proceed with the hint of illness. So, please stock up on hand sanitizer and by early June we will “hunker down” to keep germs at bay (best we can).
Please pray for Mike and I as we prepare for this “event” and that our faith is renewed daily. Pray that the kids will be unaffected and not afraid. They will know that God is with us at ALL times as we always pray. Pray that our faith as a family will grow and that we can be witnesses to others as we travel this path and God will be glorified!
The LORD is my strength and my shield; my heart trusts in him, and I am helped. My heart leaps for joy and I will give thanks to him in song.
"For I know the plans I have for you," declares the LORD, "plans to prosper you and not to harm you, plans to give you hope and a future.Jeremiah 29:11 Our unexpected journey with Down syndrome, babies with heart conditions, T21, and AVSD.
Lara, 40 year old wife to Michael (married 17 years, best years of my life)! Mom to 4 wonderful kids! Taylor, 11, Mallory, 8, Madeline, 6, and Parker born 5/23/09. We found out after delivery Parker has Down syndrome and a complete AVSD. He was scheduled to have open heart surgery at 4-6months, but God intervened! His surgery was postponed until July 2010 and God healed his VSD hole in the process. So, on July 20, 2010, Parker had open heart surgery to repair his transitional AV canal defect. He was in ICU for less than 24hours and home in 72 hours. We never looked back! I own an Executive Search Firm focused on Accounting/Financial placement (used to work in Big 4). Actively involved in my kids activites and school; all are competitive swimmers and son Taylor plays tournament baseball. Girls do tumbling as well. Avid runner and boot camp fanatic. Used to be a competitive figure skater growing up. LOVE to shop, ebay/etsy crazed, addicted to Starbucks non-fat lattes, a child of the KING, thankful that we are saved by faith and grace!