2 for 2 this week! Parker had a terrific visit to the Cardio Dr today. She was so thrilled with his progress! No medicine for Parker, AND, we get to wait until end of August to see her again rather than in 2 weeks! In fact, had we not been working on an October surgery date, we would have gone 2 MONTHS until we saw her again! His pulse was 55 and oxygen 97%, weight gain was the same as Monday, 10 lbs 5 ozs, Dr. was shocked! She wondered why I was not more ecstatic, I had to confess I already knew his weight since he was at the Pedi on Monday! Guess whatever I am eating is doing the trick, great excuse to keep eating desert and not revert back to my normal diet just yet! :) The frequency of his feedings during the day are every 2-3 hours and while tiring, worth every minute when we get such great news! We aren't supplementing him at all and both Drs. saw no need. We talked briefly about what would happen in the next few months, a sedated echocardiogram before the surgery at which point we will meet the surgeon and have our consult at the same time. I am nervous about the sedated echo, but she said it is quick and they only sleep for about 20 minutes. I will have to research this some more as we get closer. I also learned that the RSV shots, synagis, costs about $8,000. They started on the insurance approval process already. Parker will have to have the shots beginning in September until end of flu season every month. It is critical for kids with heart conditions. After his heart is repaired we will continue the shots this season, but then it isn't necessary. Still on target for October surgery.
The focus today was on celebration though...our lives gradually become brighter! A great week with so much to be thankful for! God is good ALL the time! Please continue to pray for Parker's weight gain, his continued development physically, and his overall health.
"For I know the plans I have for you," declares the LORD, "plans to prosper you and not to harm you, plans to give you hope and a future.Jeremiah 29:11 Our unexpected journey with Down syndrome, babies with heart conditions, T21, and AVSD.
Lara, 40 year old wife to Michael (married 17 years, best years of my life)! Mom to 4 wonderful kids! Taylor, 11, Mallory, 8, Madeline, 6, and Parker born 5/23/09. We found out after delivery Parker has Down syndrome and a complete AVSD. He was scheduled to have open heart surgery at 4-6months, but God intervened! His surgery was postponed until July 2010 and God healed his VSD hole in the process. So, on July 20, 2010, Parker had open heart surgery to repair his transitional AV canal defect. He was in ICU for less than 24hours and home in 72 hours. We never looked back! I own an Executive Search Firm focused on Accounting/Financial placement (used to work in Big 4). Actively involved in my kids activites and school; all are competitive swimmers and son Taylor plays tournament baseball. Girls do tumbling as well. Avid runner and boot camp fanatic. Used to be a competitive figure skater growing up. LOVE to shop, ebay/etsy crazed, addicted to Starbucks non-fat lattes, a child of the KING, thankful that we are saved by faith and grace!