the process of preparing for open heart surgery. I came home yesterday to a message from our heart surgeon's nurse. Talk about hitting you like a ton of bricks. Guess I have been pretty good at burying the surgery deep in my mind..almost forgetting it was coming...talk about bringing you back to reality! Parker will have a sedated echo on October 5th and we will have our surgery consult right after the echo with the surgeon. All of this means that within a few days after the echo we will have a surgery date and be in Texas Childrens Hospital. The timing is all in God's hands, but one of our prayers will be that we will be home before Madeline's birthday on the 22nd of October. So now we wait in this land of "limbo" trying to live normal lives, but knowing his surgery is still pending. One of my blog friends' sons just had successful surgery (her son was born 1 day before Parker) and her story has given me new peace and strength. Thank you Adrienne and Bennett!!! God is so good!
Many of you have asked how Parker is doing and the news is...great! He is much more aware, alert, and charming all! People always comment how hard it is to believe this little boy could have medical needs. We give God all the glory! We don't have a scale at home to weigh him, but I know by the fatigue in my arms, neck, and back that he is gaining! He is not on any medicine and we are so thankful!
Our next Cardio appt is Aug 28th, then an appointment with the specialty Down syndrome clinic on Sept. 1st. Please continue to pray for Parker to gain weight, have no symptoms of cardiac or pulmonary issues (no meds please), and for peace for Mike and I as we prepare for his sedated echo and surgery. If anyone has advice for us on what to ask the surgeon, please send them our way. We know some of you have traveled this path before and we are anxious to hear from you!
"For I know the plans I have for you," declares the LORD, "plans to prosper you and not to harm you, plans to give you hope and a future.Jeremiah 29:11 Our unexpected journey with Down syndrome, babies with heart conditions, T21, and AVSD.
Lara, 40 year old wife to Michael (married 17 years, best years of my life)! Mom to 4 wonderful kids! Taylor, 11, Mallory, 8, Madeline, 6, and Parker born 5/23/09. We found out after delivery Parker has Down syndrome and a complete AVSD. He was scheduled to have open heart surgery at 4-6months, but God intervened! His surgery was postponed until July 2010 and God healed his VSD hole in the process. So, on July 20, 2010, Parker had open heart surgery to repair his transitional AV canal defect. He was in ICU for less than 24hours and home in 72 hours. We never looked back! I own an Executive Search Firm focused on Accounting/Financial placement (used to work in Big 4). Actively involved in my kids activites and school; all are competitive swimmers and son Taylor plays tournament baseball. Girls do tumbling as well. Avid runner and boot camp fanatic. Used to be a competitive figure skater growing up. LOVE to shop, ebay/etsy crazed, addicted to Starbucks non-fat lattes, a child of the KING, thankful that we are saved by faith and grace!