Our favorite game...Parker LOVES to play "chase" with anyone whose up for the challenge. It can be pets or people, Parker isn't picky.. It started as crawling (round and round in circles all over the house) and has moved to push toys. The speed with which he goes is so fun to watch although radical on the hard woods, but we figure it helps with balance if nothing else. The pure joy and belly laughing that takes place during this time will cure any and all "ills." His therapist let us borrow one of her "walkers" she uses with him to practice at home. It is made so they don't have anything in front of them when walking, supposed to have arms resting on the siderails although you can see Parker uses it all different ways. I am sure I am violating one of the biggest ND "no-no's" here by using the walker some, but encouraging those feet to make steps has to count for something.
Mike and I just returned from a fantastic adult only trip to Grand Cayman. Snorkeling, swimming with stingrays, sun and fun. The last few months have had so many trips for us and we feel so blessed. This rest of this year may be long, we have gotten used to a few trips a month!
I signed Parker up for preschool last week, we are thinking 2 days a week at the church preschool starting in the fall might do everyone some good. I had to swallow my pride, they want to put him in a class with kids about 6months or so younger. My initial reaction to this is always "NO," but he is so small everyone worries about him getting hurt. So, for now, I will pray for peace about it and pray that over the summer he has some kind of amazing growth spurt. HA! For some reason this seems like admitting "failure" if that makes sense? Clearly he's behind (he's not walking for goodness sake and he's 20months!), but it just seems more "real" if that makes sense when school starts coming. I know we have years to fight this fight, but I was hoping it wouldn't start this soon. But, I know God has a plan and I have to trust in him!
"For I know the plans I have for you," declares the LORD, "plans to prosper you and not to harm you, plans to give you hope and a future.Jeremiah 29:11 Our unexpected journey with Down syndrome, babies with heart conditions, T21, and AVSD.
Lara, 40 year old wife to Michael (married 17 years, best years of my life)! Mom to 4 wonderful kids! Taylor, 11, Mallory, 8, Madeline, 6, and Parker born 5/23/09. We found out after delivery Parker has Down syndrome and a complete AVSD. He was scheduled to have open heart surgery at 4-6months, but God intervened! His surgery was postponed until July 2010 and God healed his VSD hole in the process. So, on July 20, 2010, Parker had open heart surgery to repair his transitional AV canal defect. He was in ICU for less than 24hours and home in 72 hours. We never looked back! I own an Executive Search Firm focused on Accounting/Financial placement (used to work in Big 4). Actively involved in my kids activites and school; all are competitive swimmers and son Taylor plays tournament baseball. Girls do tumbling as well. Avid runner and boot camp fanatic. Used to be a competitive figure skater growing up. LOVE to shop, ebay/etsy crazed, addicted to Starbucks non-fat lattes, a child of the KING, thankful that we are saved by faith and grace!