We continue to live life in the "fast lane," summer is supposed to be for lazy days...not so much around our house, we have been busier than ever! Thought I'd post some of the events over the last few weeks. Most of you remember we spend the summers playing baseball, last year the boys went all the way to State. Last night we won the first stage, District! Madeline has been busy with gymnastics, swimming, and theater. She was Miss Hannigan in Annie and earned herself a role as a Munchkin in the big production in the Wizard of Oz coming up in August. She loves to sing and she may have found a new passion! Mallory has been busy with gymnastics, swimming and girl scout camp. She is looking forward to her first sleep away camp with church in a few weeks. Both girls went to Vacation Bible School too. Parker and I have been busy with the typical therapy and Drs appointments, we just came back from Chicago Monday night after seeing his endocrinologist. Good news, Dr was pleased with impressed with his "skills" couldn't believe how well he was getting around (and getting into everything) and his verbal skills. He got bonus points for growing 1 1/4 inches since January and gaining a pound. He's now 32 1/4 inches and 23 lbs. We did a 4 hour growth hormone test and will have the results in about 10 days. We head back to Dallas on the 13th for his neurodevelopmental eval. Putting lots of miles on my car these days! Strangely this busyness feels like we are back to "normal" life. Days come when it seems overwhelming (and I'm still threatening to move to the country), but we have a great full life and we are blessed!
Can you tell who loves baseball? he's got quite the throwing arm too!
"For I know the plans I have for you," declares the LORD, "plans to prosper you and not to harm you, plans to give you hope and a future.Jeremiah 29:11 Our unexpected journey with Down syndrome, babies with heart conditions, T21, and AVSD.
Lara, 40 year old wife to Michael (married 17 years, best years of my life)! Mom to 4 wonderful kids! Taylor, 11, Mallory, 8, Madeline, 6, and Parker born 5/23/09. We found out after delivery Parker has Down syndrome and a complete AVSD. He was scheduled to have open heart surgery at 4-6months, but God intervened! His surgery was postponed until July 2010 and God healed his VSD hole in the process. So, on July 20, 2010, Parker had open heart surgery to repair his transitional AV canal defect. He was in ICU for less than 24hours and home in 72 hours. We never looked back! I own an Executive Search Firm focused on Accounting/Financial placement (used to work in Big 4). Actively involved in my kids activites and school; all are competitive swimmers and son Taylor plays tournament baseball. Girls do tumbling as well. Avid runner and boot camp fanatic. Used to be a competitive figure skater growing up. LOVE to shop, ebay/etsy crazed, addicted to Starbucks non-fat lattes, a child of the KING, thankful that we are saved by faith and grace!