tomorrow is my birthday...I'm not in the habit of asking for birthday gifts, but this year God placed it on my heart to "wish" for something very important! The third annual Changing Minds Butterfly Flutter By... is coming up on May 15, 2011. That day 1,000 Painted Lady Butterflies will be released for a beautiful mass flight. The transformation of the caterpillar and the butterfly to our children with Down syndrome is a wonderful representation that with treatment our children are experiencing the freedom from the limitations of Down syndrome. All funds go to expand awareness of the need for research to treat Down syndrome. There are some exciting clinical trials happening NOW, but the National Institutes of Health(NIH) says that we "are not concerned" about our children and they place their research dollars in other areas. The amount spent per child with DS is appalling, $24 per child with DS as opposed to $3000.00 per child in other areas. We are being passed over for critical research dollars because the NIH believes we just "don't care about helping our kids." To become an active voice for our children we have to become more vocal and raise funds for this very important investment in our children's future. We know more about the genetic makeup of Down syndrome than any other syndrome yet we are the furthest behind in helping our children. I have personally committed to raise $1,000.00 for this event.
Each butterfly is $21.00, you can make a donation online thru paypal by following this link, http://www.changingmindsfoundation.org/documents/fundraiser.html
or send a check to: Changing Minds Foundation 1714 Surrey Court Richmond, TX 77406
Please consider making a donation to help further Parker's future. Our goal is to give him the freedoms we all want and so richly deserve. It is possible for children with Down syndrome to achieve, we believe!
If you are in Houston, please come and join us at this wonderful family event. There will be lots of fellowship with other families and the release of the butterflies is something to be seen! God's creation taking flight!
"For I know the plans I have for you," declares the LORD, "plans to prosper you and not to harm you, plans to give you hope and a future.Jeremiah 29:11 Our unexpected journey with Down syndrome, babies with heart conditions, T21, and AVSD.
Lara, 40 year old wife to Michael (married 17 years, best years of my life)! Mom to 4 wonderful kids! Taylor, 11, Mallory, 8, Madeline, 6, and Parker born 5/23/09. We found out after delivery Parker has Down syndrome and a complete AVSD. He was scheduled to have open heart surgery at 4-6months, but God intervened! His surgery was postponed until July 2010 and God healed his VSD hole in the process. So, on July 20, 2010, Parker had open heart surgery to repair his transitional AV canal defect. He was in ICU for less than 24hours and home in 72 hours. We never looked back! I own an Executive Search Firm focused on Accounting/Financial placement (used to work in Big 4). Actively involved in my kids activites and school; all are competitive swimmers and son Taylor plays tournament baseball. Girls do tumbling as well. Avid runner and boot camp fanatic. Used to be a competitive figure skater growing up. LOVE to shop, ebay/etsy crazed, addicted to Starbucks non-fat lattes, a child of the KING, thankful that we are saved by faith and grace!